Consumer Organizations

AgrAbility Project
Purdue University, 1146 Agricultural Engineering Building
West Lafayette, IN 47907-1146
800-825-4264 or 765-494-5088
field@ecn.purdue.edu
The AgrAbility Project is a cooperative project and is funded by the U.S. Dept. of Agriculture to help establish education and assistance programs for agricultural workers with disabilities. The project brings together rehabilitation professionals and Cooperative Extension Service Educators within each state to provide services directly to the agricultural worker or a family member who is disabled.
Alabama Disabilities Advocacy Program
The Alabama Disabilities Advocacy Program (ADAP) provides quality, legally-based advocacy services to Alabamians with disabilities in order to protect, promote and expand their rights. Traumatic Brain Injury Protection and Advocacy (PATBI) is a component of ADAP. The PATBI program ensures that individuals with TBI and their families have access to: information, referrals and advice; individual and family advocacy; legal representation; and specific assistance in self-advocacy.
Phone: Toll free, within Alabama (800) 826-1675.
Alabama Head and Spinal Cord Injury Registry
The purpose of the registry is to:
  • link trauma survivors to much-needed resources as soon as possible after discharge;
  • track surveillance of mortality and morbidity statewide;
  • use information gathered to implement safety and prevention programs;
  • create a toll-free resource line for questions and information others may have about TBI.

  • Phone: Toll-free 1-888-879-4706
    Alabama SCI/TBI Community Support Network
    Impaired Drivers Trust Fund of AL

    3600 8th Ave S, Birmingham, AL 35222
    HelpLine: 800-433-8002 or 205-328-3505
    Email: ahif1@aol.com
    Direct assistance to Alabamians with Spinal Cord Injury or TBI and their families through service coordination at 10 service sites in AL. Services include: Respite Care, Housing Assistance, Limited Financial Assistance, Camp, and Information and Referral.
    Alabama Department of Rehabilitation Services
    2129 E South Blvd; P O Box 11586
    Montgomery, AL 36116-2455
    334-281-8780
    We are a state agency that provides services to children and adults with disabilities. We are unique in that we provide, through a single agency, a seamless system of service delivery for infants, toddlers, adolescents, adults and older individuals with disabilities.
    America's Athletes with Disabilities, Inc.
    8630 Fenton Street, Suite 920
    Silver Spring, MD 20910
    800-238-7632 or Email: info@americasathletes.org
    AAD promotes and sponsors sports, recreation, fitness and leisure events for children and adults with physical disabilities.
    American Association of People with Disabilities
    1629 K Street NW, Suite 503, Washington, DC 20006
    800-840-8844 or 202-457-0046
    Email: AAPD
    The American Association of People with Disabilities - AAPD, a new organization that promises to bring about "the next step in the evolution of the disability rights movement" - economic clout and power through numbers-unity, leadership and impact.
    American Syringomyelia Alliance Project
    P.O. Box 1586, Longview, Texas 75606-1586
    800-ASAP-282 or Email: Info@ASAP.org
    ASAP (American Syringomyelia Alliance Project) established on May 31,1988, publishes a newsletter, provides written material on Syringomyelia (SM) and Chiari Malformations, videotapes of lectures by prominent neurosurgeons, an annual conference to bring people with SM together, and a networking project so people with SM may contact one another. ASAP's goals include: increasing public awareness; urging research efforts and raising funds to find all causes, to develop new treatments, and to improve existing treatments.
    Arkansas Spinal Cord Commission
    1501 N University, Ste 470, Little Rock, AR 72207
    501-296-1788 or TDD: 501-296-1794
    fax: 501-296-1787 email: arkscc@aol.com
    A state agency devoted to meeting the needs of people with spinal cord disabilities in Arkansas. The spinal cord may be damaged by trauma, infection, tumor, developmental defect, or degenerative disorders such as multiple sclerosis.
    Arizona Spinal Cord Injury Association
    Samaritan Rehabilitation Institute
    1012 E Willetta STE R2, Phoenix, AZ 85006 Phone:
    602-239-5929 Email: info@azspinal.org
    An association formed to enhance the lives of those with spinal cord injuries while offering support and education to family, community, and professionals.
    The Berkeley Scene: The Ed Roberts campus & the power of nine
    An article from New Mobility magazine for May, 2000. This article by Jean Dobbs looks at the plans for the Ed Roberts Campus that will house 9 organizations that work with individuals with disabilities: Center for Independent Living, Disability Rights Education and Defense Fund, Through the Looking Glass, Disability Rights Advocates, Computer Technologies Program, Whirlwind Wheelchair International, Center for AccessibleTechnology; World Institute on Disability and the Bay Area Outreach and Recreation Program.
    Breaking New Ground
    Purdue University, 1146 ABE Building
    West Lafayette, IN 47907-1146
    800-825-4264
    The Breaking New Ground Resource Center in Purdue's Department of Agricultural & Biological Engineering is an internationally recognized as the primary source for information and resources on rehabilitation technology for persons with disabilities working in agriculture
    Breckenridge Outdoor Education Center
    P.O. Box 697, Breckenridge, CO 80424
    970-453-6422 or Email: BOEC@Colorado.NETl
    Purpose is to empower people of all abilities through high quality outdoor experiences. Our goal is to provide participants the opportunity to learn new skills, experience nature and natural areas, and to have challenges that will enhance health and self-confidence necessary to expand human potential.
    NSCIA California Chapter at Los Angeles
    8912 Olympic Blvd, Beverly Hills, CA 90211
    310-553-4929
    Education and prevention program.
    Canadian Paraplegic Association
    1101 Prince of Wales Dr, Ste 230, Ottawa, Ontario, K2C 3W7
    613-723-1033 or Email: sfisher@canparaplegic.org
    Fosters and promotes the independence, self-reliance and all participation of Canadians with spinal cord injury and other significant mobility disabilities thru counseling, information and advocacy services.
    Canine Companions for Independence
    PO Box 446, Santa Rosa, CA
    95402-0446
    800-572-2275
    CCI pioneered the concept of training dogs to assist people with physical disabilities other than blindness. They have their own breeding program, and match students and canines for training sessions.
    CareCure Community
    From the W. M. Keck Center for Collaborative Neuroscience at Rutgers University, CareCure Community forums provide the latest information on spinal cord injury and related conditions.
    Center For Universal Design
    Rehabilitation Enginering Research Center

    North Carolina State University
    PO Box 8613, Raleigh NC 27695-8613
    800-647-6777 or 919-515-3082
    Email: CUD@NCSU.EDU
    A National research, information, and technical assistance center that evaluates, develops, and promotes accessible and universal design in housing, building, and related products. They also develop publications and instructional materials, provide information and referrals and technical assistance to consumers and professionals. They collaborate with builders and manufacturers on the development of new design solutions.
    Center for Research on Women with Disabilities (CROWD)
    Baylor College of Medicine, Dept of Physical Medicine & Rehab
    3440 Richmond Ave, Suite B, Houston, TX 77046
    800-442-7693 or 713-960-0505
    A research center that focuses on issues related to health, aging, civil rights, abuse and independent living. CROWD's purpose is to promote, develop, and disseminate information to expand the life choices of women with disabilities. Researchers develop and evaluate models for interventions to address specific problems effecting women with disabilities.
    Challenge Alaska
    3350 Commercial Drive Suite 208
    Anchorage, Alaska 99501
    Phone (toll free): (888) 430-2738
    Challenge Alaska improves the quality of life for people with disabilities and the whole community through adaptive sports, therapeutic recreation, and education.
    Christopher and Dana Reeve Paralysis Foundation
    The Christopher and Dana Reeve Paralysis Resource Center (PRC) promotes the health and well-being of people living with paralysis and their families by providing comprehensive information resources and referral services.
    Courage Center
    The mission of Courage Center, a not-for-profit rehabilitation organization, is to empower people with physical disabilities to reach for their full potential in every aspect of life. We are guided by the vision that one day, all people will live, work, learn and play in a community based on abilities not disabilities.
    Phone (toll free): 1-888-846-8253
    Cure Paralysis Now
    P. O. Box 820 Alvin, Texas 77511
    Cure Paralysis Now is dedicated to all who are involved with or affected by SCI, especially researchers and clinicians in multi-disciplinary fields of study that may relate to the advancement of the healing or sure of spinal cord paralysis.
    Darrell Gwynn Foundation to Cure Paralysis
    The Darrell Gwynn Foundation exists to prevent, provide for and ultimately cure spinal cord injuries and other debilitating illnesses. To expedite specific cures, the Foundation assists in the funding of targeted research. The Darrell Gwynn Foundation is a fully accredited 501(c)3 organization.
    Delta Society - National Service Dog Center
    289 Perimeter Rd E Renton, WA 98055-1329
    1-800-869-6898 or Email 103454.1045@compuserve.com
    The Delta Society manages a National Service Dog Center that provides information on various agencies that train and provide service dogs to persons with disabilities to help you evaluate your options and make informed decisions. They are an education and referral center, offering consultation services, and the program, Pet Partners, for the training and testing of volunteers and their companion animals.
    Disability & Business Technical Assistance Center
    490 Tenth St, North Atlanta, GA 30309
    800-949-4232
    Centers respond to calls for information, technical assistance, and referrals for ADA-related assistance. There are ten regional centers across the country that provide training and outreach activities.
    Fishing Has No Boundaries
    PO Box 175, 321 Main Street, Hayward, WI 54843
    800-243-3462
    A non-profit, volunteer organization dedicated to opening the great outdoors through the world of fishing for person with disabilities. It now has 13 chapters in the United States.
    Florida SCI Resource Center
    Tampa General Rehabilitation Center
    1 Davis Islands
    P.O. Box 1289 Room R 212A, Tampa, FL 33601,
    813-253-4286,1-800-995-8544 or Email: fscirc@flspinalcord.us
    The Resource Center serves the spinal cord injured population across the State of Florida, providing access to information and resouces to meet their needs.
    ForThePeople.com
    This site, sponsored by the lawfirm Morgan & Morgan, provides consumer information on topics such as healthy living, hospital and drug information, car saftey and buying tips, discrimination, harassment, legal rights and more.
    Foundation for Spinal Cord Injury Prevention, Care & Cure
    11230 White Lake Rd, Fenton, MI 48430
    800-342-0330 or e-mail ron@fscip.org
    This non-profit educational group is dedicated to the prevention, care and cure of spinal cord injuries through public awareness, education and funding research. FSCIPCC is comprised of victims of spinal cord injuries and their families, persons dedicated to the prevention, care and cure of SCI and professionals who provide free counsel to SCI victims.
    Freedom's Wings
    1832 Lake Avenue, Scotch Plains, NJ, 07076
    908-232-6354
    A non-profit New Jersey based organization run by and for those who are physically challenged to fly in airplanes either as a passenger or as a member of the flight training program.
    Gulf Coast SCI Support Group - National Spinal Cord Injury Association
    115 Alpine St, Mobile, AL 36611
    334-456-1768
    Consumer support group. Chapter of the National Spinal Cord Injury Association.
    Canadian Farmers with Disabilities Registry
    (902) 847-9420
    The CFWDR has become Canada's primary resource center for information on farming with a disability. The program publishes a regular newsletters, has hosted several workshops and has published an extensive resource manual on assistive technology collected from Canadian farmers.
    Health Resource Center for Women with Disabilities
    From the Rehabilitation Institute in Chicago, the Women with Disabilities Center is committed to enhancing the availability, accessibility and excellence of medical and psychosocial support for all women with disabilities nationwide.
    Phone: (312) 238-1051
    Helping Hands
    1505 Commonwealth Ave, Boston, MA
    617-787-4419
    Helping Hands trains and makes available monkeys to assist people with physical disabilities
    International Wheelchair Aviators
    PO Box 2799, Big Bear City, CA 92314
    909-585-9663 or Email: iwaviators@aol.com
    A group of disabled and able bodied individuals who are interested in flying. The IWA provides handicapped flying information to those who are interested. IWA publishes a bi-monthly newsletter telling of current achievements and activities of its members.
    Job Accommodation Network
    PO Box 6080, Morgantown, WV 26506-6080
    800-526-7234 or 800-232-9675 for ADA Info
    or Email: jan@an.icdi.wvu.edu
    Provides methods, devices, and strategies for solving job accommodation problems for workers with disabilities.
    Joni and Friends International Disability Center
    A ministry founded by Joni Eareckson Tada in 1979. Joni was spinal cord injured in a diving accident in 1967 and is a quadriplegic.
    Maryland Ravens
    829 D Windstream Way
    Edgewood, Maryland 21040
    410-679-9264 or Email: MDRAVENS@aol.com
    This organization has been bridging the gap between the physically challenged and Maryland's communities through recreation (wheelchair softball, wheelchair basketball) and community awareness/speakers for more than 25 years.
    Matching Houses
    A holiday house exchange where people with disabilities swap houses with other people who have the same accessibility needs.
    Miami Project To Cure Paralysis
    PO Box 016960 (R-48), Miami, FL 33101
    800-782-6387 or 305-243-6001
    Email: MPINFO@miamiproj.med.miami.edu
    The Miami Project to Cure Paralysis, a Center of Excellence of the University of Miami School of Medicine, is a comprehensive research center dedicated to finding more effective treatments and, ultimately, a cure for paralysis that results from SCI. The Miami Project has a broad spectrum of researchers, clinicians and therapists whose expertise and focus in spinal cord injury research.
    Mike Utley Foundation
    Post Office Box 458, Orondo, Washington 98843
    1-800-294-4683
    Email: utley60@aol.com
    The Mike Utley Foundation is dedicated to finding a cure for spinal cord injuries. It provides financial support of selected research, rehabilitation and education programs on SCI. It also provides motivational and emotional support for individuals who have been disabled with such injuries.
    National Ability Center
    PO Box 682799, Park City, UT 84060
    435-649-3991
    The National Ability Center offers a wide variety of year-round activities, which include alpine and cross-country skiing, swimming, tennis, basketball, water skiing, horseback riding, rafting, camping and much more to individuals from 3 to 75 years of age with a variety of disabilities.
    National Association for Home Care
    228 Seventh St SW, Washington, DC 20003
    202-547-7424
    An association for home care and hospice-related information. Provides information on state associations, publications, legislation, regulations, and advocacy.
    National Center on Accessibility
    5020 State Rd 67 North
    Martinsville, IN 46151
    765-349-9240 or Email: nca@indiana.edu
    This is a program of Indiana's Department of Recreation and Park Administration, funded in part by the National Park Service. NCA focuses primarly on accessibility as it relates to parks, recreation and tourism industries. It conducts research, provides technical assistance, developes resources and training materials and conducts educational programs. Publishes free newsletter, Access Today.
    National Center in Physical Activity and Disability (NCPAD)
    800-900-8086 or E-Mail: ncpad@uic.edu
    This Center, operated by the Dept of Disability and Human Development at the Univ of Illinois at Chicago, offers resources for fitness and exercise professionals, health professionals, and researchers who share our interest in promoting increased physical activity for people with disabilities.
    National Clearing House of Rehabilitation Training Materials
    5202 N Richmond Hill Dr, Stillwater, OK 74078-4080
    405-624-7650 or 800-223-5219
    The NCHRTM is a federally funded grant program that collects and disseminates grant produced rehabilitation materials to rehabilitation professionals, students and other persons. They serve as an information clearing house for other disability related materials.
    National Council on Independent Living
    1916 Wilson Blvd., Suite 209, Arlington, VA 22201
    703-525-3406 or Email: ncil@ncil.org
    NCIL coordinates national support efforts to the Independent Living Centers by providing technical assistance, public education, and other services. To locate the ILC nearest to you, look in the telephone directory under Independent Living Center or call NARIC (National Rehabilitation Information Center)
    National Information Center for Children and Youth with Disabilities
    P.O. Box 1492, Washington, DC 20013
    800-695-0285 or Email: nichcy@aed.org
    NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Their special focus is children and youth (birth to age 22).
    National Organization On Disability
    910 16th St NW, Suite 600, Washington, DC 20006
    ability@nod.org
    The National Organization on Disability promotes the full and equal participation of America's 54 million men, women and children with disabilities in all aspects of life.N.O.D. is the only national disability organization concerned with all disabilities, all age groups and all disability issues.
    National Rehabilitation Information Center (NARIC)
    10001 Derekwood Lane, Suite 115
    Lanham, MD 20706
    800-346-2742 or 301-459-5900
    Email: naricinfo@kra.com
    A library and information center on disability and rehabilitation, funded by the National Institute on Disability and Rehabilitation Research, Dept of Education. They provide brochures, resource guides, and fact sheets for a small fee. They collect and distribute results of federally funded research project and maintain a listing of over 400 ILC's in the USA. They also maintain ABLEDATE and REHABDATA database.
    National Resource Center for Parents with Disabilities
    Through the Looking Glass
    2198 Sixth St, Suite 100, Berkeley, CA 94710-2204
    800-644-2666 or 510-848-1112
    E-mail: tlg@lookingglass.org
    This center operates under the auspices of TLG, an agency that offers services to families in which one or more members has a disability or medical issue. Their focus is on areas of custody, pregnancy & birthing, adoption and adaptive parenting equipment. Publishes newsletter, Parenting with a Disability (free).
    National Spinal Cord Injury Association - State Chapter Network List
    A listing of support groups in 18 states that are affiliated with the National SCI Association. Gives addresses and phone contacts.
    National Spinal Cord Injury Association
    6701 Democracy Blvd, Suite 300-9
    Bethesda, Maryland 20817
    Phone: (301) 588-6959 or FAX: (301) 588-9414
    800-962-9629
    or Email: NSCIA2@aol.com
    The NSCIA works to develop better programs and services and act as community advocates for improved access, housing, transportation, employment, and leisure time activities for disabled people. Peer support and other services are also provided to individuals with SCI, families, and health care providers. The organization also supports and encourages research aimed at improving care for persons with SCI and developing a cure for spinal cord injury and disease.
    National Sports Center for the Disabled
    P.O. Box 1290, Winter Park, CO 80482
    970-726-1540 or 303-316-1540 or Fax 970-726-4112
    Denver Office: 633 17th St. 24, Denver, CO 80202
    303-293-5711 or Fax: 303-293-5448
    Email: info@nscd.org
    NSCD leads the way in providing innovative outdoor recreation for children and adults with disabilities. In addition to skiing they offer snow boarding, snowshoeing and cross-country programs.
    National Wheelchair Basketball Assn
    David Kiley, Commissioner
    Charlotte Institute of Rehabilitation
    1100 Blythe Boulevard, Charlotte, N.C. 28203
    704-355-1064
    The website of the NWBA contains information about wheelchair basketball--the sport's history, Hall of Fame and most valuable players, plus game schedules, rosters and officers.
    National Women's Health Information Center
    1-800-994-9662
    This is a one-stop gateway for women seeking health information. It includes a special section of information for women with disabilities, including federal and state laws and regulations that protect those with disabilities, news about medical research, statistical information and information for health care professionals.
    North American Riding for the Handicapped Association
    P.O. Box 33150, Denver, CO 80233
    303-452-1212 or 800-369-RIDE
    The mission of NARHA is to promote and support equine facilitated activities for individuals with disabilities. Therapeutic riding uses equine-oriented activities to contribute positively to the cognitive, physical, emotional and social well-being of people with disabilities. Educational resources are available.
    Paralysis Resource Center
    800-539-7309 or Email: info@paralysis.org
    Provides comprehensive information resources and referral services to promote the health and well-being of people living with paralysis and their families. Sponsored by the Christopher Reeve Paralysis Foundation and the Centers for Disease Control and Prevention.
    Paralyzed Veterans Assoc of Florida
    6200 N Andrews Ave, Ft Lauderdale, FL 33309
    954-771-7822
    An organization that works to improve lives of veterans with SCI or other disabilites and achieve maximum health, productivity, & self esteem. Programs include wheelchair sports, recreation, ADA, seminars, and assisting hospitalized members.
    Paralyzed Veterans of America (PVA)
    801 18th St NW, Washington, DC 20006-3517
    800-424-8200 or 202-872-1300 or Email: info@pva.org
    A veterans service organization whose primary goal is to maximize the quality of life for people with SCI or spinal disease through research, education, advocacy, and recreation programs.
    Paraquad
    311 North Lindbergh, St. Louis, MO 63141
    314-567-1558 or email: paraquad@paraquad.org
    Paraquad is an organization that furthers the cause of independent living throughout the St. Louis, Missouri community. They exist to change society's perception of disability, and to empower people with disabilities to live as full and productive members of society. Services include Career Options and Employment Program ; Community Outreach, Independent Living Adult Program, Individual and Family Consultation , Information and Referral , and Peer Counseling.
    Project Walk
    Project Walk exists to provide an improved quality of life for people with spinal cord injuries through intense exercise-based recovery programs, education, support and encouragement.
    Protection & Advocacy for Assistive Technology - PAAT
    Box 870395, Tuscaloosa, AL 35487-0395
    Phone: 205-348-4928
    A program of the Alabama Disabilities Advocay Program, PAAT assists individuals with disabilities, their family members and authorized representatives in accessing technology services.
    Research and Training Center on Independent Living
    University of Kansas
    1052 Robert Dole Human Development Center, 100 Sunnyside Ave,
    Lawrence, KS, 66045
    785-864-4295 or Email: kahenry@ku.edu
    To help independent living centers and other disability advocacy organizations that strive to help people with disabilities become more independent and in control of their lives.
    Rick Hansen Foundation
    5th Floor, 520 West 6th Ave
    Vancouver, BC, Canada V5Z 1A1
    Phone: 604-876-6800 Toll Free: 1-800-213-2131
    The Rick Hansen Foundation is a registered charitable organization founded by Rick Hansen in 1988. An international leader in the field of spinal cord injury, the Foundation brings together diverse communities comprised of researchers, service providers, and people with SCI to accelerate improvements to the quality of life of people with SCI.
    RISE Adventures
    P.O. Box 548
    Forney, TX 75126-0548
    469-762-5075
    The goal at RISE Adventures is to create independence for the entire physically challenged population. The program uses sports, recreation and outdoor events to accomplish this goal.
    Rochester, NY Chapter of the National Spinal Cord Injury Association
    PO Box 2056, Rochester, NY 14602
    716-234-3269
    This chapter of the NSCIA in Rochester, NY serves the area and surrounding counties, with emphasis on peer support, networking, recreation, and education for individuals with SCI.
    Rolling Across Alabama
    A new organization dedicated to serving persons with physical disabilities who reside in Alabama. RAA focuses on public education, financial assistance and legislative action.
    Rural Institute on Disabilities
    52 Corbin Hall, Missoula, MT 58912
    406-243-5467 or 800-732-0323 or Email: muarid@selway.umt.edu
    The Research and Training Center on Rural Rehabilitation Services at the University of Montana is funded by the National Institute on Disabilitiy and Rehabilitation Research (NIDRR) to:
  • Provide training for and disseminate information to rehabilitation personnel, researchers, and persons with disabilities on effective rural rehab practices.
  • Conduct, coordinate, and advance programs of rehabilitation research on issues related to service delivery and adapted/modified technology for rural circumstances
  • Develop publications such as: "How Do People Make Their Living in Rural Areas? ", " Rural Rehabilitation Issues from the Consumer's Perspective" and "Funding for Assistive Technology and Related Services."
  • SCI Info-Pages
    This site is a not-for-profit, non-commercial site. It is a free and informative resource for people who have spinal cord injury and other disabling injuries or diseases of the spine. A person with SCI developed and maintains this site.
    SCI Video Access - a lending program of information videos
    Spinal Cord Injury Network
    3911 Princeton Dr, Santa Rosa, CA 95405
    1-800-548-2673 or 707-577-8796, Fax - 707-577-0605
  • SCI Video Access is a program that loans informational videotapes related to spinal cord injury to individuals with SCI and their families. Videotapes are available on these, and many more, topics: attendant care, wheelchair maintenance, bowel management, autonomic dysreflexia, catherization, FES, syringomyelia, spinal cord injury, neurogenic bladder, wheelchair basketball, skiing, parenting, wheelchair tennis, home modification, exercise tapes, pressure sore prevention. Individuals must first register with SCI Network. Tapes are sent through the mail and must be returned within 10 days (postage is prepaid). Funded by grant from the P V A, Education and Training Foundation.

  • Self Reliance, Inc. - Center for Independent Living
    11215 N Nebraska Ave. Suite B-3, Tampa, FL 33612-5774
    813-975-6560 or E-mail: keybored@earthlink.net
    Self Reliance provides comprehensive and multifaceted independent living services to persons with a wide range of disabilities in the Tampa Bay area of Florida.
    Spinal Cord Central
    Operated jointly by National Spinal Cord Injury Association (NSCIA) and United Spinal Association, Spinal Cord Central is a web-based resource for people with paralysis as a result of spinal cord injury or disease, their families, friends and others who have an interest or involvement in persons with SCI/D, including health care and other professionals, direct service providers, and businesses focused primarily on serving this market.
    Spinal Cord Injury & Network International (SCINI)
    3911 Princeton Dr, Santa Rosa, CA 95405-7013
    800-548-2673 or 707-577-8796
    Email: spinal@sonic.net
    SCINI responds to the needs of individuals with SCI and their families by providing
  • Telephone Information and Referral
  • A Video Lending Library
  • Information Resource Library
  • Spinal Cord Injury Association of Illinois
    1032 S LaGrange Rd, LaGrange, IL 60525
    708-352-6223 FAX: 708-325-9065
    Email: SCIINJURY@aol.com
    SCI Association of Illinois is an information and support resource for people with spinal cord injury and their families, as well as health care and related professionals. They provide information and referral services, peer support, educational programs, injury prevention, research, publications and a program of public awareness and education.
    Spinal Cord Injury Resource Center
    An online resource center that contains information on spinal cord injury,a chat room, message board, and much more. Subscribe to their electronic newsletter.
    SPLORE
    27 West 3300 South, Salt Lake City, Utah 84115
    801-484-4128 or Email:info@splore.com
    SPLORE's mission is to encourage and support people of all abilities in their movement toward greater independence and well-being through outdoor adventure activities.
    Spondylitis Association of America
    14827 Ventura Blvd. #222, Sherman Oaks, CA 91403
    Phone: 800-777-8189
    Email: info@spondylitis.org
    This national organizations works to eradicate ankylosing spondylitis and related diseases. Their web site provides quality information and an interactive forum.
    TBI - Traumatic Brain Injury Model Systems Program and the TBI National Data Center
    In 1987, The U.S. Department of Education, National Institute on Disability and Rehabilitation Research (NIDRR) provided funding to establish the Traumatic Brain Injury (TBI) Model Systems of Care. These research and demonstration grants focus primarily on: 1) developing and demonstrating a model system of care for persons with TBI, stressing continuity and comprehensiveness of care; and 2) maintaining a standardized national database for innovative analyses of TBI treatment and outcomes. There are seventeen centers currently funded.
    Technology for Independence: Community-Based Resource Center
    The purpose of the TI-CBRC is to facilitate the development of real-world, scientifically rigorous knowledge and research on assistive technology and environmental access for persons with disabilities in partnership with disability researchers, disability advocates, community-based organizations, and other disability community members.
    U.S. Quad Rugby Assn
    Judy Pfiester - Secretary
    309 Stoney Ford Rd, Holland, PA 18966
    215-504-0443 or Email Judy Pfiester or the
    President of the U.S.Q.R.A.
    The website for the U.S. Quad Rugby Association. Contains information about all the happenings in quad rugby throughout the country - clinics, games, file library and more. Submit your local information.
    United SpinalUnited Spinal Association
    United Spinal Association (formerly known as Eastern Paralyzed Veterans Association) is dedicated to enhancing the lives of individuals with spinal cord injury or disease by assuring quality health care, promoting research, advocating for civil rights and independence, educating the public about these issues and enlisting their help to achieve these fundamental goals.
    The Wheelchair Site
    The Wheelchair Site is an independent website designed to help people understand the challenges faced by people with physical limitations. It is an unbiased resource, not affiliated with any wheelchair manufacturers or wheelchair distributors and doesn't sell products directly.
    Wheelchair Sports USA
    3595 E Fountain Blvd, Suite L-1, Colorado Springs, CO 80910
    719-574-1150 or Email: administrator@wusa.org
    Wheelchair Sports, USA, formerly the National Wheelchair Athletic Association, organizes athletes who use Wheelchairs (summer sporting activities only) on local, regional, national, and international levels.
    Wheelin' Sportsmen of America, Alabama Chapter
    - a recreation group takes a new approach to disabilities. Describes a new recreation organization that focuses on opportunity, support, and teamwork. Article from the Newsletter, Pushin' On.
    Zia Chapter, Paralyzed Veterans of America
    833 Gibson SE, Albuquerque, NM 87102

    The Zia Chapter of the PVA works to aid and assist Veterans through advocacy and providing information related to diseases of the spinal cord.
     
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