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caregiverAccepting New Help: SCI & Aging A pamphlet from RRTC on Aging with SCI at Craig Hospital that discusses the changes in one's independence brought on by a spinal cord injury that require the need for assistance. It covers issues of self-esteem and accepting help after SCI and how this can change as one ages. Attendant Forum - Aug, 2001 An article from New Mobility, by June Price that discusses two issues relating to attendants: "Preparing for attendant care because of aging parents " and "Firing an problem attendant". Caregiver Spouse
By: Kevin Robinson A first hand story from New Mobility magazine (Feb, 1998) that presents the issues of a spouse being a caregiver for the individual with SCI. Caregivers and Personal Assistants: How to Find, Hire and Mange the People Who Help You (or Your Loved One!) 3rd Ed. By: Alfred DeGraff Publisher: Saratoga Access Publications 800-266-5564 or email: caregiver@saratoga-publications.com Date: March, 2002 This book will show you how to find and hire quality help providers - when and where you need them - and how to keep them longer. Discusses working with family caregivers, agency aides or personally employed PAs. 512 pages. Caregiver’s Guide to Self-Health: Solving Problems and Reducing Stress UAB has designed this interactive program to offer caregivers 3 techniques to help improve their health and quality of life. 1 - Card Sort
Caregivers of Persons with Spinal Cord Injury: A Longitudinal Investigation by J. Scott Richards, PhD and Richard M Shewchuk, PhD. Research Update Newsletter, September, 1996. Discusses the research on the impact of caregiving over the first year after a spinal cord injury. 4pp. Produced by the RRTC in Secondary Complications in SCI at the University of Alabama at Birmingham, Dept. of P M & R. Caregivers: Taking Care of Yourself This is a summary of a presentation given by J. Scott Richards, PhD at the 1995 SCI Research Update Conference for consumers with SCI and their families. Provides updates to information on SCI, from the Pushin' On Newsletter produced by the RRTC in Secondary Complications in SCI at the University of Alabama at Birmingham, Dept. of P M & R Caring for Caregivers SCI InfoSheet #17, Revised June, 2008 PDF Format - or - Text Format Discusses the effects of caregiver stress on the individuals with SCI as well as the caregiver, a self test for stress and tips for handling stress. Crip College Christian Bagg is a T8 paraplegic from Calgary (Alberta, Canada) who broke his back during a snowboarding competition 8 years ago. His web site "Crip College" is extremely professional & offers wonderful articles from both Christian & his mother (who provides a caregiver's perspective), as well as a unique section called 'tricks of the trade', where Christian shares some 'tricks' to better maneuver in a chair in everyday life. Family Adjustment to Spinal Cord Injury
Available from: UAB Model SCI System 1717 6th Ave S, Rm 529, Birmingham, AL 35233-7330 Date: 1988 This booklet addresses some of the concerns and experiences which the family of a person with SCI may experience. It focuses on some of the initial questions and concerns loved ones may have about the injury and feelings that families experience. Available in PDF or $2 by mail [Evaluate] Family Caregiver Alliance 690 Market St, Ste 600, San Francisco, CA 94101 415-434-3388 or Email: info@caregiver.org A support organization for caregivers with information for families, caregivers, professionals, policy makers and the media. Includes an online support group. For Better and For Worse: Long Term Caregivers A pamphlet from Craig Hospital that discusses the stress placed on caregivers and ways to deal with the stress . (1994) The Ghost Behind the Wheelchair by Lila Ridings Darnell A mother's story of caring for a son after a spinal injury that covers her experiences from the time of his injury to his independent life, six years later. 2002. Cost: $9 paperback or $3.95 for download Healthy Living: Relationships An article from Pushin' On addressing questions family members face on relationships with a spouse who has an SCI(January, 2001). How to Help Someone Who Uses a Wheelchair Without Hurting Yourself Date: 1997 Available from: Production Development Associates A Labor of Love: Beating Stress in Long-Term Caregiving An article from New Mobility magazine for June, 2000. This article by Richard Holicky discusses how caregiving is a most stressful occupation - and offers potential problems & solutions for family caregivers. National Association for Home Care 228 Seventh St SW, Washington, DC 20003 202-547-7424 An association for home care and hospice-related information. Provides information on state associations, publications, legislation, regulations, and advocacy. National Family Caregivers Association (NFCA) 9621 East Bexhill Drive, Kensington, MD 20895-3104 800-896-3650; Fax: 301-942-2302 Email: CAREGIVING@AOL.COM NFCA is a nonprofit membership organization whose mission is to improve the overall quality of life of America's 18 million family caregivers, regardless of their relationship to the person needing care, or the specific illness or disability being dealt with. NFCA was started to improve the quality of life for all caregivers by providing information, educational materials, and advocacy for their cause. Current services to members include: TAKE CARE! Self Care for the Family Caregiver newsletter; Caregiver to Caregiver Support Network; Speakers Bureau; Cards for Caregivers; a newly published book, The Resourceful Caregiver, which is available in local bookstore or through NFCA; NFCA Caregiver Member Survey Report; and National Family Caregivers Week Celebrations in November.Contact NFCA for cost of membership. Personal Caregivers: Tips, Tricks and Tales from Individuals with Spinal Cord Injury Three individuals with longstanding quadriplegia described their experiences and shared tips for finding, hiring and managing personal caregivers. These presentations were followed by a brief talk by a UW rehabilitation psychologist about maintaining personal boundaries when working with a personal caregiver. There is a video and a report provided. Problem Solving Interventions for Caregivers and Persons with Spinal Cord Injury An article from Pushin' On updating results of an ongoing study of the long-term effects of the relationship between persons with SCI and family caregivers. SCI -FYI Resource Guide Produced By: Santa Clara Valley Medical Center 950 S. Bascom Ave. Suite 2011, San Jose, CA 95128 (408) 295-9896 Ext. 24 or e-mail: TBISCIPROJ@aol.com 1997 The SCI-FYI is a comprehensive resource guide intended for anyone in Santa Clara Valley (and beyond) needing information on services related to spinal cord injury - from the rehab professional looking for services to help a client, to family members searching for programs to assist their loved one, to the individual with a spinal cord injury who wants to improve his or her personal situation. Includes resources on Alcohol/Chemical Dependency Agencies; Assistive Technology; Crisis Intervention; Driving; Durable Medical Equipment; Financial Assistanct; Housing; Independent Living; Legal Services; Parenting; Recreation; and Transportation. Share the Care Share the Care is a caregivers handbook for organizing a group to care for someone who is recuperating from a traumatic injury or who is seriously ill. The authors, Sheila Warnock and Cappy Capossela, based the book on personal experiences. Published by Simon & Schuster, it is available on the internet for $14. Stress Management: Chill Out for Your Health
A summary of a presentation discussing stress management and knowing what your stressors are. From Pushin' On Newsletter, Winter, 1999, Vol 17(1), produced by the RRTC on Secondary Conditions of SCI at the University of Alabama at Birmingham, Dept. of P M & R. |