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Locating Information about SCI - ConsumersPlease take a moment to Evaluate this information so that we can provide you with additional information in the future.
This information sheet includes resources about spinal cord injury, including research and information centers, agencies, and organizations. Use them as a starting point to locate answers to your questions. Updated February 2008. AGRABILITY PROJECT 800-825-4264 or 765-494-5088 email: bng@ecn.purdue.edu www.agrability.org Purdue University, 1146 ABE Building West Lafayette, IN 47907-1146 An international source for information and resources on rehab technology for persons with disabilities working in agriculture. AMERICAN ASSOC OF PEOPLE WITH DISABILITIES 800-840-8844 or 202-457-0046 email: aapd@aol.com www.aapd.com 1629 K Street NW, Suite 503, Washington, DC 20006 Provides economic clout and power in numbers, unity, leadership and impact in the disability rights movement. CENTER FOR ASSISTIVE TECHNOLOGY AND ENVIRONMENTAL ACCESS 404-894-4960 email: catea@coa.gatech.edu www.sedbtac.org 490 10th Street, Atlanta, GA 30318 Provides ADA information, technical assistance and training to businesses and people with disabilities. They also provide referrals to the other ten regional centers around the country. CENTER FOR RESEARCH ON WOMEN WITH DISABILITIES 800-443-7693 or 713-798-5782 email: crowd@bcm.tmc.edu www.bcm.edu/crowd Baylor College of Medicine, Dept of PM&R One Baylor Plaza, Houston, TX 77030 Focuses on issues related to health, aging, civil rights, abuse and independent living of women with disabilities. Develop and disseminate information to expand the life choices of women with disabilities. CENTER FOR UNIVERSAL DESIGN 800-647-6777 or 919-515-3082 email: cud@ncsu.edu www.design.ncsu.edu/cud College of Design, North Carolina State University Campus Box 8613, Raleigh, NC 27695-8613 Collects, updates, publishes, and distributes resource information about construction and home modifications for accessibility. Provides information and technical assistance on universal design and accessible housing. CHRISTOPHER & DANA REEVE PARALYSIS RESOURCE CENTER 800-539-7309 email: info@paralysis.org www.paralysis.org Provides a comprehensive, national source of information for people living with paralysis. You may email questions or call the toll-free number to speak with an Information Specialist. DISABLED SPORTS USA 301-217-0960 email: information@dsusa.org www.dsusa.org 451 Hungerford Dr, Suite 100, Rockville, MD 20850 Provides children & adults with disabilities access to sports, recreation, and physical education programs. They sponsor "learn to" programs in a variety sports; competitive programs for serious athletes; family services; training and certification of professionals; and educational videotapes and manuals. FES INFORMATION CENTER 216-231-3257 email: info@fesc.org http://fescenter.cwru.edu/ 11000 Cedar Ave, Cleveland, OH 44106-3052 Provides a literature (brochures, information packets, and bibliographies) and referral service on FES (Functional Electrical Stimulation) technology. JOB ACCOMMODATION NETWORK (JAN) 800-526-7234 (or 800-232-9675 for ADA Info) email: jan@jan.wvu.edu www.jan.wvu.edu PO Box 6080, Morgantown, WV 26506-6080 Provides methods, devices, and strategies for solving job accommodation problems for workers with disabilities. MIAMI PROJECT TO CURE PARALYSIS 800-782-6387 or 305-243-7147 www.miamiproject.miami.edu PO Box 016960 (R-48), Miami, FL 33101 A comprehensive research center dedicated to finding more effective treatments and ultimately a cure for paralysis. NAT COUNCIL ON INDEPENDENT LIVING (NCIL) 703-525-3406 or 703-525-4153 (TTY) email: ncil@ncil.org www.ncil.org 1916 Wilson Blvd, Suite 209, Arlington, VA 22201 Coordinates efforts of Independent Living Centers, that advocate for rights of people with disabilities. NAT FAMILY CAREGIVERS ASSOCIATION (NFCA) 800-896-3650 email: info@thefamilycaregiver.org www.nfcacares.org 10400 Connecticut Ave, Ste 500, Kensington, MD 20895 Works to improve the quality of life of family caregivers. Provides information, education, support, public awareness and advocacy. NAT REHABILITATION INFORMATION CTR (NARIC) 800-346-2742 or 301-459-5900 email: naricinfo@heitechservices.com www.naric.com 4200 Forbes Boulevard, Suite 202, Lanham, MD 20706 A library and information center on disability providing brochures, resources guides, fact sheets and collecting and distributing results of federally funded research projects. NATIONAL SPINAL CORD INJURY ASSOC (NSCIA) 800-962-9629 or 301-214-4006 email: info@spinalcord.org www.spinalcord.org 6701 Democracy Blvd, Ste 300-9, Bethesda, MD 20817 Works to develop programs and serve as advocates for people with SCI, families and health care providers. PARALYZED VETERANS OF AMERICA (PVA) 800-424-8200 email: info@pva.org www.pva.org 801 18th Street NW, Washington, DC 20006 A veterans service organization devoted to maximizing the quality of life for people with spinal cord injury or spinal disease through research, education, advocacy, and recreation programs. (see Paraplegia News) SPINALCORD INJURY INFORMATION NETWORK 205-934-3283 email: sciweb@uab.edu www.spinalcord.uab.edu 619 19th Street S., SRC-529, Birmingham, AL 35249 Website with SCI materials and links to resources for people with disabilities. Managed by the University of Alabama at Birmingham Model Spinal Cord Injury System. SPINALCORD INJURY NETWORK INTERNATIONAL 800-548-2673 or 707-577-8796 email: spinal@sonic.net www.spinalcordinjury.org 3911 Princeton Dr, Santa Rosa, CA 95405-7013 Provides an information and referral service for persons with SCI. They loan SCI related videotapes through the mail to individuals with spinal cord injury and their families. THROUGH THE LOOKING GLASS (TLG) 800-644-2666 or 510-848-1112 email: tlg@lookingglass.org www.lookingglass.org 2198 Sixth St, Suite 100, Berkeley, CA 94710 A research and training center that offers clinical and supportive services, training, and research to families in which one or more members has a disability or medical issue. UNITED SPINAL ASSOCIATION 800-404-2898 www.unitedspinal.org 75-20 Astoria Boulevard, Jackson Heights, NY 11370 An organization is dedicated to enhancing the lives of individuals with spinal cord injury or disease by ensuring quality health care, promoting research, advocating for civil rights, educating the public about these issues, and enlisting its help to achieve these fundamental goals. WHEELCHAIR SPORTS, USA 515-574-1150 email: wsusa@aol.com www.wsusa.org 1668 320th Way, Earlham, IA 50072 Developes wheelchair sporting opportunities. Sporting events for adults and youth include Paralympics, archery, shooting, swimming, table tennis and more. Magazines & Newsletters
Inter@ct Pushin' On The Project SCI Access Spinal Cord Injury Update *NOTE*More information on newsletters and magazines can be found at http://www.spinalcord.uab.edu/show.asp?durki=21817 Online Communication Resources Through the Internet and Communication Software you can "talk" to others via your computer. Connect to news groups, bulletin boards, discussion groups, message boards, and Chat Rooms for topics related to SCI and disabilities. CANADIAN ABILITIES FOUNDATION www.enablelink.org/chat.html?showchat=1 DISABOOM.COM DISABLED INDIVIDUALS MOVEMENT FOR EQUALITY NETWORK (DIMENET) QUAD-LINK LOCAL AGENCIES There are local or regional services that may be able to assist you with needs that occur due to spinal cord injury. A Social Worker at your rehabilitation center usually has the names of other agencies in your area. INDEPENDENT LIVING CENTERS (ILCs) offer a variety of programs and services for individuals with disabilities. ILC staff work to help the individuals achieve independence and become active in their community by providing independent living skills, peer support, and advocacy. ILC staff help determine needs and make referrals concerning issues such as accessible housing and personal care assistance. To locate an ILC in your area contact: * Independent Living Research Utilization (ILRU) Program Phone: 713-520-0232 www.ilru.org email: ilru@ilru.org 2323 S. Shepherd, Ste 1000, Houston, TX 77019 * ILRU Directory of Centers www.ilru.org/html/publications/directory/index.html In Alabama: * Birmingham ILC www.birminghamilc.org * Montgomery ILC 334-281-8780 * Mobile ILC 251-460-0301 * Jasper ILC 205-387-0159 STATE VOCATIONAL REHABILITATION SERVICES help individuals with disabilities find gainful employment. They work to ensure that the individual is prepared and trained to work in the job best suited for his/her skills and abilities. Services may include: evaluation and assessment, counseling, skills or job training, purchase of assistive devices, job placement and follow-up. The name of each state's agency may vary. In Alabama it is called Alabama Department of Rehabilitation Services. Look in the Blue Pages of your telephone directory under State Government or in the White Pages under Government Agencies for an office in your area. * State Vocational Rehabilitation Services (for phone numbers) www.spinalcord.uab.edu/show.asp?durki=30035 * Alabama State Vocational Rehabilitation Services www.rehab.state.al.us * Birmingham Vocational Rehabilitation Services 800-441-7609 PROTECTION & ADVOCACY SYSTEMS (P&A) are federally funded programs that work to protect the rights of individuals with disabilities by acting as legal advocates. They help with discrimination problems related to disability in the areas of housing, employment, education, transportaton and public services. To locate the P&A programs in your state, contact: * National Disability Rights Network 202-408-9514 www.napas.org email: info@ndrn.org 900 Second St NE, Ste 211, Washington, DC 20002 In Alabama contact: * Alabama Disabilities Advocacy Program (ADAP) 800-826-1675 www.ADAP.net email: adap@adap.ua.edu Box 870395, Tuscaloosa, AL 35487 * American's with Disabilities Act (ADA) Information Line 800-205-9986 * Statewide Technology Access & Response (STAR) 334-281-8780 or 800-441-7607 www.rehab.state.al.us/star  Published by:Office of Research Services 619 19th Street South, Birmingham, AL 35249 (205) 934-3283 or (205) 934-4642 (TTD only) mail to: sciweb@uab.edu Revised: February 2008 Revised by: Shirley Estill © 2008 Board of Trustees of the University of Alabama at Birmingham provides equal opportunity in education and employment. This publication is supported by grant #H133N000016 from the National Institute of Disability and Rehabilitation Research, Office of Special Education and Rehabilitative Services, Department of Education, Washington, DC. Opinions expressed in this document are not necessarily those of the granting agency. |